Costs and value of the MINDSET epilepsy self-management program
Official title: SIP24-008 Economic analysis of an evidence-based MEW epilepsy self-management intervention (MINDSET) in community and healthcare settings.
Funded at University of Arizona · NIH-11186954 · Data updated 2026-11-12
This project compares the costs and benefits of the MINDSET self-management program for people with epilepsy in clinic and community settings.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Arizona NIH-funded |
| Lab location | 1 site (Tucson, United States) |
| Project start | September 30, 2024 |
| Project end | September 29, 2027 |
| Funding year | 2025 |
| Award (this year) | $300,000 |
| NIH project number | 5U48DP006838-02 |
| Project ID | NIH-11186954 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates are people with epilepsy who receive care through participating clinics or community programs and who could use a self-management program like MINDSET.
✕Less likely to help
People without epilepsy or those unable to engage with self-management tools (for example due to severe cognitive impairment) are unlikely to benefit from this program.
What this research studies
As someone with epilepsy, this project looks at how much it costs to run the MINDSET program and what benefits people get from it. The team will use existing records and new data collected over time from clinics and community programs to measure costs and outcomes. They will calculate cost-effectiveness, cost-utility, and cost-benefit using standard methods to compare MINDSET to usual care and to linkages with other MEW programs. Results will inform whether MINDSET is a good value and how it could be expanded or paid for.
Why it matters
Potential benefit: If successful, the work could show that MINDSET delivers good health and quality-of-life benefits for people with epilepsy relative to its costs, supporting wider access and funding.
How similar studies have gone: Prior MINDSET work has shown improvements in epilepsy self-management and connections to other MEW programs, but comprehensive economic analyses like this are more limited.
Where this research is happening
-
University of Arizona
Tucson, United States Active
Researchers
- Principal investigator: Labiner, David M — University of Arizona
- Study coordinator: Labiner, David M
Related research
Other NIH-funded projects on the same topics.
-
Economic evaluation of MEW Network epilepsy self-management programs for broad adoption
This project tests how cost-effective two epilepsy self-management programs (UPLIFT and PACES) are when used in real-world healthcare and community settings, to help people with epilepsy live better.
-
Economic analysis of the MEW self-management program for epilepsy (MINDSET) in real-world settings
This grant studies how a proven epilepsy self-management program can be implemented in communities and clinics, and how its costs and benefits stack up.
-
Self-management Intervention to Reduce Epilepsy Burden in Ugandans with Epilepsy
A program helps people with epilepsy in Uganda manage their condition daily to improve quality of life and reduce stigma.
-
Improving daily life for Ugandans living with epilepsy
This project is developing a self-management program to help people with epilepsy in Uganda better manage their condition and improve their quality of life.
-
Evaluating the cost-effectiveness of a self-management program for epilepsy.
This study is looking at how the MINDSET program can help people with epilepsy manage their condition better and whether it’s worth the cost, so that patients can enjoy a better quality of life.
-
Evaluating the cost-effectiveness of epilepsy self-management programs
This study looks at how much the UPLIFT and PACES programs, which help people with epilepsy manage their condition and improve their mental health, cost and what benefits they bring, so we can better support and promote these helpful programs in healthcare.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.