Coordination of operations for a consortium focused on rare diseases
Administrative Core
This study is all about bringing together different experts to work on understanding rare diseases like hyperphenylalaninaemias, making sure everyone communicates well and shares important information to help improve research and care for those affected.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Oregon Health & Science University NIH-funded |
| Lab location | 1 site (Portland, United States) |
| Project ID | NIH-10701013 on NIH RePORTER |
What this research studies
This research involves the management and coordination of a consortium dedicated to studying rare diseases, particularly focusing on hyperphenylalaninaemias. The team at Oregon Health & Science University will oversee the financial and operational aspects, ensuring effective communication between various clinical research sites and advocacy groups. They will also manage data collection and analysis, ensuring compliance with regulatory standards and developing safety monitoring plans. This structured approach aims to enhance collaboration and streamline research efforts in the field of rare diseases.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with rare diseases, particularly those affected by hyperphenylalaninaemias.
Not a fit: Patients with common diseases or conditions unrelated to rare diseases may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and treatment options for patients with rare diseases.
How similar studies have performed: Previous research in coordinating efforts for rare diseases has shown promise in improving patient outcomes and advancing treatment options.
Where this research is happening
Portland, United States
- Oregon Health & Science University — Portland, United States (Active)
Researchers
- Principal investigator: Harding, Cary O. — Oregon Health & Science University
- Study coordinator: Harding, Cary O.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.