Connecting patients with sickle cell disease to specialized care
Recruitment and Engagement in Care to Impact Practice Enhancement (RECIPE) for Sickle Cell disease
The RECIPE project is working to help adults with sickle cell disease get the care they need, especially those who might not have easy access to specialists, by using successful strategies from HIV care to improve treatment and screenings for everyone, particularly in rural areas or for those facing financial challenges.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Alabama at Birmingham NIH-funded |
| Lab location | 1 site (Birmingham, United States) |
| Project ID | NIH-10902059 on NIH RePORTER |
What this research studies
The RECIPE project aims to bridge the gap between scientific knowledge and practical care for individuals with sickle cell disease (SCD). It focuses on identifying adults who are not receiving appropriate SCD care, particularly those who may not have access to specialists. By utilizing implementation science, the project seeks to adapt successful patient engagement strategies from HIV care to improve access to disease-specific treatments and screenings for SCD patients. This initiative is particularly important for those living in rural areas or facing socio-economic barriers.
Who could benefit from this research
Good fit: Ideal candidates for this research are adults with sickle cell disease who are currently not receiving guideline-based care.
Not a fit: Patients who are already receiving comprehensive care from SCD specialists may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly improve access to specialized care and treatment for patients with sickle cell disease.
How similar studies have performed: Previous research has shown success in adapting patient engagement strategies from HIV care to other chronic conditions, indicating potential for this approach in sickle cell disease.
Where this research is happening
Birmingham, United States
- University of Alabama at Birmingham — Birmingham, United States (Active)
Researchers
- Principal investigator: Kanter, Julie — University of Alabama at Birmingham
- Study coordinator: Kanter, Julie
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.