Connecting adults with sickle cell disease to specialist care
Recruitment and Engagement in Care to Impact Practice Enhancement (RECIPE) for Sickle Cell disease
['FUNDING_R01'] · UNIVERSITY OF ALABAMA AT BIRMINGHAM · NIH-11146338
This project will find adults with sickle cell disease who are not seeing specialists and help connect them to guideline-based care.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF ALABAMA AT BIRMINGHAM (nih funded) |
| Locations | 1 site (BIRMINGHAM, UNITED STATES) |
| Trial ID | NIH-11146338 on ClinicalTrials.gov |
What this research studies
This project works to find adults with sickle cell disease who aren't getting care from SCD specialists and to link them to those services. The team will adapt proven outreach and patient-identification methods from HIV care using a multi-stage, patient-centered process. They will use implementation science tools within the Sickle Cell Disease Implementation Consortium to identify unaffiliated patients, address rural and socioeconomic barriers, and test approaches to engage people in specialist clinics. The aim is to increase delivery of recommended screenings and disease-modifying treatments by improving connections to care.
Who could benefit from this research
Good fit: Adults with sickle cell disease who are not currently connected to an SCD specialist—especially those living in rural or underserved areas—are ideal candidates.
Not a fit: People who already receive regular, guideline-based care from an SCD specialist or those outside the adult-focused eligibility (e.g., pediatric patients) are unlikely to gain new benefits.
Why it matters
Potential benefit: If successful, more people with sickle cell disease could gain access to guideline-based screenings and disease-modifying treatments through stronger links to specialist care.
How similar studies have performed: Outreach and linkage methods have improved care engagement for people with HIV, and applying these approaches to sickle cell disease is novel but builds on that proven experience.
Where this research is happening
BIRMINGHAM, UNITED STATES
- UNIVERSITY OF ALABAMA AT BIRMINGHAM — BIRMINGHAM, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: KANTER, JULIE — UNIVERSITY OF ALABAMA AT BIRMINGHAM
- Study coordinator: KANTER, JULIE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Acquired Immune Deficiency Syndrome Virus, Acquired Immunodeficiency Syndrome Virus