Conference on Usher Syndrome
Official title: International Usher Syndrome Conference
Funded at Boston Children's Hospital · NIH-11074256 · Data updated 2026-11-12
This conference is a friendly gathering for scientists, doctors, and families dealing with Usher Syndrome, where they'll share the latest research and treatment options, and families can connect with experts to learn more about improving care and support.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Boston Children's Hospital NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project start | December 1, 2024 |
| Project end | November 30, 2025 |
| Funding year | 2025 |
| Award (this year) | $60,000 |
| NIH project number | 1R13DC022523-01 |
| Project ID | NIH-11074256 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for participation include individuals diagnosed with Usher Syndrome and their families, as well as researchers and clinicians interested in this condition.
✕Less likely to help
Patients who do not have Usher Syndrome or are not involved in related research may not receive direct benefits from this conference.
What this research studies
This conference aims to gather scientists, clinicians, and families affected by Usher Syndrome, a genetic condition that causes deafness and blindness. It will feature discussions on the latest research findings, advancements in diagnosis, prevention, and treatment options for Usher Syndrome. The event will include scientific presentations and a family day to foster collaboration and support among researchers and those impacted by the condition. It is an opportunity for patients and families to engage with experts in the field and learn about ongoing efforts to improve care.
Why it matters
Potential benefit: If successful, this conference could lead to advancements in the understanding and treatment of Usher Syndrome, ultimately benefiting affected patients and their families.
How similar studies have gone: Previous conferences on Usher Syndrome have successfully facilitated collaboration and knowledge sharing among researchers, indicating a positive trend in advancing the field.
Where this research is happening
-
Boston Children's Hospital
Boston, United States Active
Researchers
- Principal investigator: Geleoc, Gwenaelle S — Boston Children's Hospital
- Study coordinator: Geleoc, Gwenaelle S
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.