Comparing health outcomes of Haitian-American and Haitian immigrant children with sickle cell disease.
Comparative Study of Haitian and Miami Cohorts of Haitian-American and Haitian Immigrant Children with Sickle Cell Disease (CSHSCD)
This study is looking at how kids with sickle cell disease in Miami and Haiti are doing, focusing on how culture and access to healthcare make a difference in their treatment and care.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Miami School of Medicine NIH-funded |
| Lab location | 1 site (Coral Gables, United States) |
| Project ID | NIH-10652477 on NIH RePORTER |
What this research studies
This research investigates the health outcomes of children with sickle cell disease (SCD) in two different settings: Miami, Florida, and Haiti. It aims to understand how cultural factors and healthcare access affect the incidence and management of SCD among Haitian-American and Haitian immigrant children. The study will utilize existing databases for newborn screening and will also implement new screening methods in Haiti to enhance early detection and treatment. By comparing these two cohorts, the research seeks to identify disparities and improve care strategies for affected children.
Who could benefit from this research
Good fit: Ideal candidates for this research are Haitian-American and Haitian immigrant children diagnosed with sickle cell disease.
Not a fit: Patients who do not have sickle cell disease or are not of Haitian descent may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved screening and treatment protocols for sickle cell disease, enhancing the quality of life for affected children.
How similar studies have performed: Previous research has shown success in improving health outcomes for sickle cell disease through enhanced screening and comprehensive care, indicating that this approach has potential.
Where this research is happening
Coral Gables, United States
- University of Miami School of Medicine — Coral Gables, United States (Active)
Researchers
- Principal investigator: Alvarez, Ofelia Amparo — University of Miami School of Medicine
- Study coordinator: Alvarez, Ofelia Amparo
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.