Community Engagement Core focusing on Alzheimer's disease and related dementias
Official title: Community Engagement Core
Funded at National Bureau of Economic Research · NIH-11399401 · Data updated 2026-11-12
A program to involve people living with ADRD, families, and caregivers in research and to share findings with communities, aiming to improve care and prevention.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Bureau of Economic Research NIH-funded |
| Lab location | 1 site (Cambridge, United States) |
| Project start | September 20, 2024 |
| Project end | August 31, 2029 |
| Funding year | 2026 |
| Award (this year) | $278,863 |
| NIH project number | 5U54AG090084-03 |
| Project ID | NIH-11399401 on NIH RePORTER |
Who could benefit from this research
✓Could help
Individuals living with ADRD and their families or caregivers who can provide input on priorities and voice experiences to shape research and care practices.
✕Less likely to help
There may be no direct benefit for some participants who simply provide input without immediate changes to their care.
What this research studies
This grant supports a Community Engagement Core that brings practical experiences from ADRD care into research projects and helps translate findings to stakeholder communities. It will compile a broad list of stakeholder organizations across advocacy, government, healthcare, industry, and philanthropy, and develop a formal plan for engaging them. The core plans regular stakeholder meetings, a dedicated area on the consortium website for communication and resources, and a monitoring plan to track engagement outcomes. The effort is designed to ensure research relevance, uptake, and impact for people affected by Alzheimer's disease and related dementias.
Why it matters
Potential benefit: If successful, patients and caregivers could see research become more aligned with real-world needs and faster translation of findings into care and support.
How similar studies have gone: Stakeholder engagement approaches have shown promise in aligning research with patient needs and improving uptake, though outcomes can vary by context.
Where this research is happening
-
National Bureau of Economic Research
Cambridge, United States Active
Researchers
- Principal investigator: Au, Rhoda — National Bureau of Economic Research
- Study coordinator: Au, Rhoda
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.