Columbia CureGN program for common glomerular kidney diseases
The Columbia PCC for CureGN: the Cure Glomerulonephropathy network
['FUNDING_U01'] · COLUMBIA UNIVERSITY HEALTH SCIENCES · NIH-11381245
This project trains a coordinator and gathers feedback from Latino and other underrepresented patients with glomerular kidney diseases to make it easier for them to join and stay in the CureGN research network.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | COLUMBIA UNIVERSITY HEALTH SCIENCES (nih funded) |
| Locations | 1 site (NEW YORK, UNITED STATES) |
| Trial ID | NIH-11381245 on ClinicalTrials.gov |
What this research studies
You would be asked to complete short surveys and possibly a follow-up interview about your experiences joining and staying in kidney disease research. Columbia will train a Clinical Research Coordinator to use what patients say to design culturally tailored recruitment and retention approaches. The work focuses on people with IgA nephropathy (Berger's disease) and the other common glomerular diseases included in CureGN. The goal is to make the CureGN group more reflective of the U.S. population so research findings apply to more people.
Who could benefit from this research
Good fit: People with IgA nephropathy (Berger's disease) or other common glomerular diseases, especially those who identify as Latino/Hispanic or come from underrepresented communities and are willing to do surveys or interviews, are ideal candidates.
Not a fit: People without glomerular kidney disease or those unwilling to take part in interviews or surveys are unlikely to benefit directly from this project.
Why it matters
Potential benefit: If successful, this could help people from Latino and other underrepresented communities take part in kidney disease research more easily and ensure study findings better reflect diverse patients.
How similar studies have performed: Targeted outreach and culturally tailored retention strategies have improved enrollment and retention in other disease studies, but applying them specifically to CureGN and glomerular kidney diseases is relatively new.
Where this research is happening
NEW YORK, UNITED STATES
- COLUMBIA UNIVERSITY HEALTH SCIENCES — NEW YORK, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: BOMBACK, ANDREW STEPHEN — COLUMBIA UNIVERSITY HEALTH SCIENCES
- Study coordinator: BOMBACK, ANDREW STEPHEN
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Berger's Disease, Disease