Columbia CureGN network for primary glomerular kidney diseases

The Columbia PCC for CureGN: the Cure Glomerulonephropathy network

NIH-funded research Columbia University Health Sciences · NIH-11381246

This network follows children and adults with primary glomerular kidney diseases and collects health data and samples to improve care and understanding.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionColumbia University Health Sciences NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-11381246 on NIH RePORTER

What this research studies

If I join, researchers will collect my medical records, blood and urine samples, and patient-reported information over time to track how my kidney condition changes. The project enrolls people with minimal change disease (MCD), focal segmental glomerulosclerosis (FSGS), IgA nephropathy (IgAN), and membranous nephropathy (MN) from many clinical sites. The effort includes nearly 2,800 participants and is run by a consortium of academic centers, a data coordinating center, and patient advocacy groups. The collected biospecimens and data are used for clinical, mechanistic, and translational studies that aim to guide future treatments and care.

Who could benefit from this research

Good fit: Children and adults diagnosed with MCD, FSGS, IgAN, or MN are the ideal candidates for participation.

Not a fit: People without these specific glomerular diseases, or those already on long-term dialysis or living with a kidney transplant, are unlikely to gain direct benefit from this network.

Why it matters

Potential benefit: If successful, this work could lead to better ways to diagnose, monitor, and personalize treatment for people with these glomerular diseases.

How similar studies have performed: Earlier registries and cohort studies have produced important insights, and CureGN expands on that success with a larger, more detailed, multi-site design.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.