Collecting detailed health information from ALS patients in clinics
Clinic-based Multicenter ALS Natural History Data Collection
This study is looking to learn more about how ALS changes over time by collecting information from patients like you who are being treated at different clinics, so we can better understand the disease and help create new treatments.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Minnesota NIH-funded |
| Lab location | 1 site (Minneapolis, United States) |
| Project ID | NIH-10855076 on NIH RePORTER |
What this research studies
This research focuses on gathering comprehensive natural history data from patients diagnosed with amyotrophic lateral sclerosis (ALS) who are treated at multidisciplinary clinics. By collecting detailed clinical information and measurements over time, the study aims to enhance understanding of ALS progression and improve the development of new treatments. Patients will be enrolled from multiple clinics, ensuring a diverse representation of the ALS population. The data collected will be used to inform clinical trials and evaluate treatment effectiveness.
Who could benefit from this research
Good fit: Ideal candidates for participation are individuals diagnosed with ALS who are receiving care at multidisciplinary clinics.
Not a fit: Patients who are not diagnosed with ALS or those who are not receiving care at the participating clinics may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding of ALS and the development of more effective therapies.
How similar studies have performed: Previous research has shown that collecting comprehensive natural history data can significantly enhance the understanding of ALS and aid in the development of effective treatments.
Where this research is happening
Minneapolis, United States
- University of Minnesota — Minneapolis, United States (Active)
Researchers
- Principal investigator: Walk, David — University of Minnesota
- Study coordinator: Walk, David
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.