Collecting detailed health information from ALS patients in clinics
Clinic-based Multicenter ALS Natural History Data Collection
This study is looking to learn more about how amyotrophic lateral sclerosis (ALS) affects people by collecting detailed information from patients who visit specialized clinics, so we can better understand the disease and help create new treatments.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Minnesota NIH-funded |
| Lab location | 1 site (Minneapolis, United States) |
| Project ID | NIH-10573727 on NIH RePORTER |
What this research studies
This research focuses on gathering comprehensive natural history data from patients with amyotrophic lateral sclerosis (ALS) who visit multidisciplinary clinics. By collecting detailed clinical information and measurements over time, the project aims to create a rich dataset that reflects the diverse experiences of ALS patients. This data will be used to enhance understanding of the disease's progression and to support the development of new treatments. Patients enrolled in the study will contribute to a larger effort to improve clinical trials and therapeutic evaluations for ALS.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with ALS who are receiving care at multidisciplinary clinics.
Not a fit: Patients who are not diagnosed with ALS or those who do not have access to multidisciplinary clinics may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment options and better management strategies for ALS patients.
How similar studies have performed: Previous research has shown that collecting detailed longitudinal data from ALS patients can significantly enhance understanding of the disease and inform treatment development.
Where this research is happening
Minneapolis, United States
- University of Minnesota — Minneapolis, United States (Active)
Researchers
- Principal investigator: Walk, David — University of Minnesota
- Study coordinator: Walk, David
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.