Collecting data on the natural history of ALS from clinic patients
Clinic-based Multicenter ALS Natural History Data Collection
['FUNDING_R01'] · UNIVERSITY OF MINNESOTA · NIH-11183152
This study is looking to learn more about how ALS changes over time by collecting information from over 1,700 patients at different clinics, so we can better understand the disease and help improve treatments for everyone living with ALS.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF MINNESOTA (nih funded) |
| Locations | 1 site (MINNEAPOLIS, UNITED STATES) |
| Trial ID | NIH-11183152 on ClinicalTrials.gov |
What this research studies
This research focuses on gathering comprehensive data about the progression of amyotrophic lateral sclerosis (ALS) from patients attending multidisciplinary clinics. By collecting detailed clinical information and measurements from over 1,700 ALS patients across nine clinics, the project aims to create a rich dataset that reflects the diverse experiences of individuals with ALS. This data will be used to enhance understanding of the disease's natural history, which is crucial for developing effective treatments and conducting clinical trials. Patients enrolled in the study will contribute to a longitudinal dataset that tracks disease progression over time.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with amyotrophic lateral sclerosis (ALS) who are receiving care at multidisciplinary clinics.
Not a fit: Patients with conditions other than ALS or those not receiving care at the participating clinics may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and treatment options for ALS patients.
How similar studies have performed: Previous research has shown that comprehensive data collection from ALS patients can significantly enhance understanding of the disease and inform treatment development.
Where this research is happening
MINNEAPOLIS, UNITED STATES
- UNIVERSITY OF MINNESOTA — MINNEAPOLIS, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: WALK, DAVID — UNIVERSITY OF MINNESOTA
- Study coordinator: WALK, DAVID
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.