Collecting data on cancer care experiences of young cancer survivors
Core C: Survey Shared Resource Core
This study is all about hearing from young people who survived cancer, so we can learn more about their experiences and how they’re doing after treatment, and we’re inviting around 5,000 survivors from California and North Carolina to share their thoughts through a survey.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Kaiser Foundation Research Institute NIH-funded |
| Lab location | 1 site (Oakland, UNITED STATES) |
| Project ID | NIH-10911988 on NIH RePORTER |
What this research studies
This research focuses on gathering high-quality, patient-reported information from adolescent and young adult (AYA) cancer survivors to better understand their care experiences and outcomes. The project aims to design and implement a comprehensive survey targeting AYA survivors who are 2-10 years post-diagnosis. By utilizing evidence-based methods and a team of experts in epidemiology and psychometrics, the research will analyze the collected data to support various cancer-related projects. The survey will be administered to approximately 5,000 participants across specific healthcare systems in California and North Carolina.
Who could benefit from this research
Good fit: Ideal candidates for participation are adolescent and young adult cancer survivors who are 2-10 years post-diagnosis.
Not a fit: Patients who are not within the adolescent and young adult age range or who are not cancer survivors may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could provide valuable insights that improve the care and support for young cancer survivors.
How similar studies have performed: Previous research has successfully utilized similar survey methods to gather patient-reported outcomes in cancer survivorship.
Where this research is happening
Oakland, UNITED STATES
- Kaiser Foundation Research Institute — Oakland, United States (Active)
Researchers
- Principal investigator: Chubak, Jessica — Kaiser Foundation Research Institute
- Study coordinator: Chubak, Jessica
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.