Childhood cancer survivorship resource
Official title: Childhood Cancer Survivorship Study
Funded at St. Jude Children's Research Hospital · NIH-11296842 · Data updated 2026-11-12
This project gathers long-term health data and blood samples from people who survived cancer as children to learn how treatment affects health later in life.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | St. Jude Children's Research Hospital NIH-funded |
| Lab location | 1 site (Memphis, United States) |
| Project start | July 20, 1993 |
| Project end | November 30, 2026 |
| Funding year | 2026 |
| Award (this year) | $4,427,680 |
| NIH project number | 5U24CA055727-32 |
| Project ID | NIH-11296842 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates are people who were diagnosed with cancer as children and survived at least five years after diagnosis, particularly those treated during the cohort years and willing to provide health information or samples.
✕Less likely to help
People newly diagnosed with cancer, those who did not survive five years, or those whose treatments fall well outside the cohort eras may not directly benefit from this specific resource.
What this research studies
I am part of a large group of people who survived cancer as children and who have been followed for decades, with regular health surveys and medical record reviews. The program links detailed treatment records to later health problems and stores DNA and genetic data in a biorepository for approved research. Researchers across many institutions can use these de-identified data and samples to study late effects like heart disease, second cancers, and quality of life. That shared resource has enabled many publications and ongoing projects aimed at improving care for survivors.
Why it matters
Potential benefit: If successful, this resource can help identify risks and guide follow-up care to prevent or catch late health problems earlier in childhood cancer survivors.
How similar studies have gone: Long-term survivor cohorts have already produced many important findings and clinical guidelines, and this resource itself has supported hundreds of publications and trials.
Where this research is happening
-
St. Jude Children's Research Hospital
Memphis, United States Active
Researchers
- Principal investigator: Armstrong, Gregory — St. Jude Children's Research Hospital
- Study coordinator: Armstrong, Gregory
Related research
Other NIH-funded projects on the same topics.
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Predicting Late Effects in Childhood Cancer Survivors Using Patient-Generated Health Data
This grant tests a mobile health approach to track symptoms, activity, sleep, and heart rate in adults who survived childhood cancer to predict future health problems and guide care.
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Using Your Health Data to Understand Childhood Cancer Recovery
This project collects health information directly from adult survivors of childhood cancer to better understand and predict their long-term health.
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Bridging cancer center and local doctor care to help childhood cancer survivors keep up with follow-up
A telehealth education program, tailored patient-portal messages, and coordinated outreach to primary care doctors to help childhood cancer survivors stay on track with recommended long-term follow-up care.
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Improving care for childhood cancer survivors through community partnerships
This study is all about helping kids who have survived cancer get the follow-up care they need by using telehealth to connect them with their doctors, making it easier for them to understand and manage their health after treatment.
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Using patient-generated health data to predict outcomes for childhood cancer survivors
This study is looking at childhood cancer survivors to understand their long-term health needs better, so we can create personalized plans to help them stay healthy and improve their quality of life.
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How distance affects care for childhood cancer survivors
This study looks at how far childhood cancer survivors, ages 0-20, have to travel to get specialized care and how that distance affects their health and access to medical help, especially for those who might be facing more challenges.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.