Carolina endometrial cancer survivor cohort
The Carolina Endometrial Cancer Study: A population-based survivor cohort
Following people diagnosed with endometrial cancer in North Carolina, with extra focus on Black women, to learn what affects cancer outcomes and long-term health.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Univ of North Carolina Chapel Hill NIH-funded |
| Lab location | 1 site (Chapel Hill, United States) |
| Project ID | NIH-11283963 on NIH RePORTER |
What this research studies
You would be invited to join soon after an endometrial cancer diagnosis identified through North Carolina’s cancer registry. Participants give access to medical records and tumor tissue, provide a cheek (buccal) sample, and complete short questionnaires by mail, phone, or online. The study aims to enroll about 1,700 women, including roughly 667 Black women, and will contact participants every 18 months to update health and treatment information. The researchers will use this information to track outcomes and understand reasons for differences in survival and survivorship care.
Who could benefit from this research
Good fit: Adults newly diagnosed with endometrial cancer in North Carolina are the intended participants, with active efforts to include Black women.
Not a fit: People without a recent endometrial cancer diagnosis or those living outside North Carolina are unlikely to be eligible or to receive direct benefit from participating.
Why it matters
Potential benefit: Could reveal factors behind worse outcomes and point to better follow-up care or targeted interventions to reduce disparities for endometrial cancer survivors.
How similar studies have performed: Large survivor cohorts for other cancers have produced useful insights into treatment and survivorship patterns, but a large, population-based cohort focused on endometrial cancer and racial disparities is relatively new.
Where this research is happening
Chapel Hill, United States
- Univ of North Carolina Chapel Hill — Chapel Hill, United States (Active)
Researchers
- Principal investigator: Nichols, Hazel B — Univ of North Carolina Chapel Hill
- Study coordinator: Nichols, Hazel B
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.