Care gaps and needs for adolescents and young adults with cancer
Clinical Care Gaps and Unmet Needs in Adolescent and Young Adult (AYA) Cancers
This program will find ways to improve cancer care and long-term follow-up for people diagnosed between ages 15 and 39.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Kaiser Foundation Research Institute NIH-funded |
| Lab location | 1 site (Oakland, UNITED STATES) |
| Project ID | NIH-11211192 on NIH RePORTER |
What this research studies
This program focuses on cancer care and outcomes for people diagnosed between ages 15 and 39 and aims to address their unique needs during major life transitions. It targets gaps in continuity of care as patients move from pediatric to adult providers, fertility preservation options, financial and career impacts, and fragmented follow-up across multiple clinicians. The work is organized as three linked projects spanning the cancer care continuum to identify where care falls short and to develop practical solutions. Findings are intended to inform better survivorship planning, care coordination, and supportive services for AYA survivors.
Who could benefit from this research
Good fit: Ideal candidates are adolescents and young adults diagnosed with cancer between ages 15 and 39, especially those transitioning from pediatric to adult care or receiving survivorship follow-up.
Not a fit: People diagnosed well outside the 15–39 age range or those not engaged in survivorship care may not benefit directly from this program.
Why it matters
Potential benefit: If successful, the program could produce tools and care practices that improve coordination, fertility support, and long-term health follow-up for AYA cancer survivors.
How similar studies have performed: Previous AYA-focused efforts have improved aspects like fertility counseling and survivorship clinics, but comprehensive programs that span all care transitions remain relatively limited.
Where this research is happening
Oakland, UNITED STATES
- Kaiser Foundation Research Institute — Oakland, United States (Active)
Researchers
- Principal investigator: Kushi, Lawrence H — Kaiser Foundation Research Institute
- Study coordinator: Kushi, Lawrence H
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.