Care and outcomes for people living with spina bifida at Gillette Children’s Specialty Healthcare
Official title: Participation of Gillette Children's Specialty Healthcare in the NSBPR
Funded at Gillette Children's Specialty Healthcare · NIH-11616591 · Data updated 2026-11-12
A program funded by NIH to improve care and outcomes for people living with spina bifida through Gillette Children’s Specialty Healthcare.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Gillette Children's Specialty Healthcare NIH-funded |
| Lab location | 1 site (St. Paul, United States) |
| Project start | September 1, 2019 |
| Project end | August 31, 2027 |
| Funding year | 2023 |
| Award (this year) | $116,476 |
| NIH project number | 6U01DD001268-05M005 |
| Project ID | NIH-11616591 on NIH RePORTER |
Who could benefit from this research
✓Could help
Individuals with spina bifida who receive or need ongoing multidisciplinary care at Gillette or within its network.
✕Less likely to help
Patients not affected by spina bifida or not engaged with the Gillette network may not directly benefit.
What this research studies
This grant supports Gillette Children’s Specialty Healthcare in St. Paul to coordinate and improve comprehensive care for children and adults with spina bifida, leveraging their neurosurgery, orthopedics, urology, rehabilitation, and therapy services. The project builds on a long history of SB care, using multiple clinics and care models to reach patients across Minnesota. By systematically tracking care processes and outcomes, the program aims to identify best practices and optimize how care is delivered over time. Patients and families may see more integrated care pathways and access to a broader team dedicated to spina bifida management.
Why it matters
Potential benefit: If successful, patients with spina bifida could experience better coordinated care and improved health outcomes.
How similar studies have gone: Prior spina bifida programs have shown benefits from integrated, multidisciplinary care approaches; this project builds on those concepts in a real-world setting.
Where this research is happening
-
Gillette Children's Specialty Healthcare
St. Paul, United States Active
Researchers
- Principal investigator: Cady, Rhonda G — Gillette Children's Specialty Healthcare
- Study coordinator: Cady, Rhonda G
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.