Bringing caregivers, families, and community groups into Alzheimer's research
Official title: Stakeholder Engagement Core
Funded at National Bureau of Economic Research · NIH-11195052 · Data updated 2026-11-12
This project connects people with Alzheimer's and their caregivers, plus community and industry partners, to make research findings more useful and easier to share.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Bureau of Economic Research NIH-funded |
| Lab location | 1 site (Cambridge, United States) |
| Project start | September 20, 2024 |
| Project end | August 31, 2029 |
| Funding year | 2025 |
| Award (this year) | $278,863 |
| NIH project number | 5U54AG090084-02 |
| Project ID | NIH-11195052 on NIH RePORTER |
Who could benefit from this research
✓Could help
People living with Alzheimer's disease or related dementias, their family members, caregivers, advocacy groups, and community or provider organizations interested in contributing to research priorities are ideal participants.
✕Less likely to help
People seeking immediate medical treatment or direct therapeutic benefit should not expect this engagement effort to provide clinical care or quick changes to their treatment.
What this research studies
You and your caregivers can help shape what researchers study and how results are shared. The team will compile a broad list of advocacy groups, providers, agencies, industry partners, and other stakeholders and create a plan for outreach and feedback. They will form a stakeholder advisory group, host a dedicated area on the consortium website for resources and communication, and hold formal meetings twice a year. The core will also monitor and report on engagement activities to make sure stakeholder input is used.
Why it matters
Potential benefit: If successful, this work could make research results more relevant to patients and speed the translation of useful findings into care and support services.
How similar studies have gone: Similar stakeholder-engagement efforts have been used to shape research priorities and improve dissemination, though their effects on clinical outcomes are typically indirect.
Where this research is happening
-
National Bureau of Economic Research
Cambridge, United States Active
Researchers
- Principal investigator: Au, Rhoda — National Bureau of Economic Research
- Study coordinator: Au, Rhoda
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.