Brainstem breathing neurons and sudden unexpected death in epilepsy

Role of brainstem cardiorespiratory neurons in SUDEP

NIH-funded research University of Virginia · NIH-11238558

This project looks at whether faulty brainstem breathing cells cause dangerous breathing stoppage after seizures in people with epilepsy, especially those with SCN8A mutations.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Virginia NIH-funded
Lab location1 site (Charlottesville, United States)
Project IDNIH-11238558 on NIH RePORTER

What this research studies

Researchers are using mouse models that carry the same SCN8A gene mutations found in some people who died from SUDEP to study how seizures lead to breathing failure. They will record breathing, oxygen levels, and brainstem neuron activity during and after seizures and watch for apnea that comes before heart stoppage. The team will test interventions in mice to restore normal breathing after seizures to see if SUDEP can be prevented. The findings aim to point toward drugs or emergency therapies that could protect breathing in high‑risk patients.

Who could benefit from this research

Good fit: People with epilepsy who experience convulsive seizures and those with SCN8A-related epileptic encephalopathy would be the most directly relevant candidates for related trials or follow‑up studies.

Not a fit: Patients without convulsive seizures or apnea during seizures and those whose epilepsy is well controlled are less likely to see direct benefit from these specific findings.

Why it matters

Potential benefit: If successful, this work could point to treatments or rescue strategies that prevent seizure‑related breathing collapse and reduce SUDEP risk.

How similar studies have performed: Previous human monitoring (MORTEMUS) and animal studies have linked post‑seizure apnea to SUDEP, but applying SCN8A patient‑derived mouse models to pinpoint brainstem neuron mechanisms and test lifesaving rescues is relatively novel.

Where this research is happening

Charlottesville, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.