Better palliative care for Black and Hispanic people with Parkinson's and Lewy body dementia
Building Capacity to Meet the Palliative Care Needs of People with Parkinson Disease, Lewy Body Dementia and Related Disorders living in Black and Hispanic Communities
Designing culturally-tailored palliative care programs to better meet the needs of Black and Hispanic adults living with Parkinson's disease and Lewy body dementia.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Rochester NIH-funded |
| Lab location | 1 site (Rochester, United States) |
| Project ID | NIH-11290717 on NIH RePORTER |
What this research studies
You and your family would be invited to help shape palliative care that fits your culture and community. Researchers will work with Black and Hispanic patients, caregivers, and community groups to learn about common needs and barriers through interviews and focus groups. The team will co-design training for clinicians and materials for families, and pilot processes to make sure they work in real-world community settings. This planning work is meant to prepare a larger effort to bring more equitable palliative care to people with PD and LBD.
Who could benefit from this research
Good fit: Black and Hispanic adults living with Parkinson's disease or Lewy body dementia, especially older adults and their caregivers, who are willing to share their experiences and work with community partners.
Not a fit: People without Parkinson's disease or Lewy body dementia, or those not in the Black or Hispanic communities targeted by this project, are unlikely to benefit directly from this grant.
Why it matters
Potential benefit: If successful, this work could lead to palliative care programs that reduce symptoms, improve quality of life, and increase access for Black and Hispanic people with Parkinson's and Lewy body dementia.
How similar studies have performed: Previous palliative care work in Parkinson's disease has shown benefits for symptoms and caregiver support, but culturally-tailored programs for Black and Hispanic communities remain largely untested.
Where this research is happening
Rochester, United States
- University of Rochester — Rochester, United States (Active)
Researchers
- Principal investigator: Kluger, Benzi M — University of Rochester
- Study coordinator: Kluger, Benzi M
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.