Better home and community support for people with Alzheimer's and related dementias
Advancing Coordination of Home and Community based Services for the ADRD Population
This project looks at how home and community services and medical providers work together to help people with Alzheimer's and related dementias stay supported at home.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of California, San Francisco NIH-funded |
| Lab location | 1 site (San Francisco, United States) |
| Project ID | NIH-11298975 on NIH RePORTER |
What this research studies
If you or a loved one has Alzheimer's disease or a related dementia, this project focuses on the services that help people stay at home instead of moving to a nursing facility. The research team is combining Medicaid claims and encounter data with other information to create a new, public dataset about organizations that deliver home- and community-based services (HCBS). They will map what services are available, how organizations are connected to hospitals and clinics, and where gaps or coordination problems exist. The goal is to use real-world service data to show where supports are strong or missing across different places.
Who could benefit from this research
Good fit: The focus is on adults (21+) with Alzheimer's disease or related dementias who receive or are eligible for Medicaid-funded home- and community-based services.
Not a fit: People without Alzheimer's or related dementias, those who do not use HCBS, or those not covered by Medicaid are unlikely to be directly included or benefit from the dataset created by this project.
Why it matters
Potential benefit: If successful, this work could highlight gaps and strengths in service availability and coordination so more people with dementia can remain safer and better supported at home.
How similar studies have performed: Some regional research has described HCBS use, but creating a linked, publicly available Medicaid HCBS dataset to study coordination is a relatively new and not-yet-widely-tested approach.
Where this research is happening
San Francisco, United States
- University of California, San Francisco — San Francisco, United States (Active)
Researchers
- Principal investigator: Adler-Milstein, Julia Rose — University of California, San Francisco
- Study coordinator: Adler-Milstein, Julia Rose
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.