Better awareness, referrals, and education for people with Crohn's disease and ulcerative colitis
Official title: RFA-DP-23-002, Improving Health Outcomes for Patients with Inflammatory Bowel Disease through Evidence-based Awareness, Referral, and Education Programs
Funded at Crohn's and Colitis Fdn of America, INC. · NIH-11135289 · Data updated 2026-11-12
This project uses proven awareness, referral, and education programs to help people with Crohn's disease and ulcerative colitis get diagnosed and treated sooner.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Crohn's and Colitis Fdn of America, INC. NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project start | September 30, 2023 |
| Project end | September 29, 2028 |
| Funding year | 2025 |
| Award (this year) | $737,000 |
| NIH project number | 5U01DP006746-03 |
| Project ID | NIH-11135289 on NIH RePORTER |
Who could benefit from this research
✓Could help
People with Crohn's disease or ulcerative colitis—or those with symptoms suggestive of IBD—particularly individuals diagnosed in childhood or from racial, ethnic, or low-income communities—are the most likely candidates for these programs.
✕Less likely to help
Patients who already receive timely, specialized IBD care or who are not near participating clinics or community partners may not directly benefit from these programs.
What this research studies
From your perspective, the project adapts evidence-based education and referral programs to reach people with Crohn's disease and ulcerative colitis, with special attention to children and under-served racial and ethnic groups. It partners with clinics, community organizations, and care teams to improve how quickly symptoms are recognized, referrals are made, and treatment is started. The team will build on findings from prior work like the INPUT study and track outcomes such as diagnostic delays, hospitalizations, and access to care over several years. The aim is to develop practical approaches that clinics and community groups can use to reduce disparities in IBD care.
Why it matters
Potential benefit: If successful, this could lead to earlier diagnoses, better access to care, and fewer complications from IBD, especially for children and under-served communities.
How similar studies have gone: Related awareness and referral programs have improved diagnosis and care in other conditions and the INPUT findings support tailoring such approaches to IBD, though large-scale national evidence specifically in IBD remains limited.
Where this research is happening
-
Crohn's and Colitis Fdn of America, INC.
New York, United States Active
Researchers
- Principal investigator: Wingate, Laura Dawn — Crohn's and Colitis Fdn of America, INC.
- Study coordinator: Wingate, Laura Dawn
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.