Behavior checklist for children and teens with Down syndrome
Behavior Measure for Children and Adolescents with Down Syndrome
['FUNDING_R01'] · CINCINNATI CHILDRENS HOSP MED CTR · NIH-11176709
Building an easy-to-use behavior checklist in English and Spanish to better capture common behavior concerns for children and teens with Down syndrome ages 2–17.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | CINCINNATI CHILDRENS HOSP MED CTR (nih funded) |
| Locations | 1 site (CINCINNATI, UNITED STATES) |
| Trial ID | NIH-11176709 on ClinicalTrials.gov |
What this research studies
This project will create the Behavior Inventory for Down Syndrome (BIDS), a caregiver-friendly checklist designed for children and teens ages 2–17. Families and clinicians will help pick questions that reflect behaviors often seen in Down syndrome, and the team will test the tool in both English and Spanish. Researchers will collect questionnaire responses and compare them with clinical observations and existing measures to make sure the checklist is reliable and accurate. If invited, you and your child might complete surveys and possibly attend brief clinic visits or phone interviews to help validate the tool.
Who could benefit from this research
Good fit: Children and adolescents with Down syndrome aged 2–17 years and their caregivers, especially English- or Spanish-speaking families, are the ideal participants.
Not a fit: Adults with Down syndrome over age 17, people without Down syndrome, or caregivers who cannot complete English or Spanish questionnaires are unlikely to benefit directly from this project.
Why it matters
Potential benefit: If successful, this checklist could help families and doctors spot behavior concerns earlier and track whether treatments or supports are helping.
How similar studies have performed: Existing behavior questionnaires were not validated specifically for Down syndrome, so this project applies well-established questionnaire methods in a new, condition-specific way.
Where this research is happening
CINCINNATI, UNITED STATES
- CINCINNATI CHILDRENS HOSP MED CTR — CINCINNATI, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: ESBENSEN, ANNA J. — CINCINNATI CHILDRENS HOSP MED CTR
- Study coordinator: ESBENSEN, ANNA J.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.