Becoming Data Sovereign for Aaniiih and Nakoda Peoples
Official title: Towards Becoming Data Sovereign
Funded at Fort Belknap Indian Community · NIH-11413702 · Data updated 2026-11-12
A tribal-led project aims to strengthen data systems and governance so Aaniiih and Nakoda communities can safely collect, store, and use their own health and community data.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Fort Belknap Indian Community NIH-funded |
| Lab location | 1 site (Harlem, United States) |
| Project start | September 3, 2025 |
| Project end | July 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $279,101 |
| NIH project number | 5S06GM159349-02 |
| Project ID | NIH-11413702 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates are members of the Aaniiih and Nakoda communities who participate in tribal data projects, advisory activities, or related health research partnerships.
✕Less likely to help
Individuals not engaged in tribal data activities or not residing within the community may not directly benefit.
What this research studies
This initiative will build tribal leadership and a Tribal Advisory Board to guide data activities and create opportunities for local capacity building. It will develop a set of research codes based on tribal data sovereignty to govern research within Aaniiih and Nakoda lands. The project will craft a Data Governance Strategy covering management, safety, and sharing of data, and will examine existing policies to inform better practices. Investigators and trainees will be educated about data sovereignty, safety, and storage, and a tribal research agenda will be established to guide future studies.
Why it matters
Potential benefit: If successful, communities will have stronger control over their data and better-informed public health decisions.
How similar studies have gone: Other tribal data sovereignty efforts have shown that robust governance and community-led data policies improve trust and data utility.
Where this research is happening
-
Fort Belknap Indian Community
Harlem, United States Active
Researchers
- Principal investigator: Brockie, Teresa — Fort Belknap Indian Community
- Study coordinator: Brockie, Teresa
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.