BDCRC Career Enhancement Core for Batten Disease Translational Leaders
Official title: BDCRC - Career Enhancement Core
Funded at Hugo W. Moser Res Inst Kennedy Krieger · NIH-11417525 · Data updated 2026-11-12
A program to train the next generation of clinician-researchers to lead translational work in Batten disease (NCLs) over a one-year fellowship.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Hugo W. Moser Res Inst Kennedy Krieger NIH-funded |
| Lab location | 1 site (Baltimore, United States) |
| Project start | September 15, 2025 |
| Project end | August 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $169,901 |
| NIH project number | 5U54HD122210-02 |
| Project ID | NIH-11417525 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates are early-career clinician investigators in neurology or related fields with an interest in Batten disease and translational research.
✕Less likely to help
This grant focuses on training researchers rather than directly enrolling patients in a clinical study.
What this research studies
This grant funds a one-year fellowship program to develop clinician investigators focused on translating Batten disease research into better diagnostics, management, and therapies. Fellows will receive structured career development activities and work on a translational research project under a BDCRC mentor. The program also launches educational initiatives for clinicians and rare-disease communities to broaden awareness and engagement in NCL research. The goal is to grow multidisciplinary teams capable of advancing patient-centered translational science in Batten disease.
Why it matters
Potential benefit: If successful, it could accelerate the training of leaders who will push Batten disease research from bench to bedside, speeding patient-accessible diagnostics and treatments.
How similar studies have gone: Past clinician-training programs in rare diseases have built strong translational teams and accelerated project milestones, though this exact BDCRC model is specific to Batten disease.
Where this research is happening
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Hugo W. Moser Res Inst Kennedy Krieger
Baltimore, United States Active
Researchers
- Principal investigator: Berry-Kravis, Elizabeth Mara — Hugo W. Moser Res Inst Kennedy Krieger
- Study coordinator: Berry-Kravis, Elizabeth Mara
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.