An X‑chromosome genetic hotspot linked to inherited eye and brain disorders

Homeotic hotspot in the human genome for eye and brain disease

['FUNDING_R01'] · UNIVERSITY OF CALIFORNIA AT DAVIS · NIH-11128696

This project looks at how DNA insertions near the SOX3 gene on the X chromosome cause several inherited eye and brain conditions by changing which cells genes turn into, using patient cells and lab models.

Quick facts

Phase['FUNDING_R01']
Study typeNih_funding
SexAll
SponsorUNIVERSITY OF CALIFORNIA AT DAVIS (nih funded)
Locations1 site (DAVIS, UNITED STATES)
Trial IDNIH-11128696 on ClinicalTrials.gov

What this research studies

Researchers will work with cells donated by people who have X‑linked eye or brain disorders and reprogram those cells into stem cells to study development in the lab. They will use a new PCR test to find the exact DNA insertion breakpoints and 3D genome mapping (Hi‑C) to see how those insertions change chromatin architecture around SOX3. Lab-grown retinal and cerebellar cell types and single‑cell RNA sequencing will show how ectopic SOX3 expression can change cell identity or trigger degeneration. The team will also search for additional patients with similar Xq27 insertions to expand understanding of the range of affected conditions.

Who could benefit from this research

Good fit: Ideal candidates are people (or families) with X‑linked or unexplained inherited eye or brain conditions such as BASR, foveal dysgenesis, retinitis pigmentosa, spinocerebellar ataxia, or undiagnosed cases suspected to involve Xq27 insertions.

Not a fit: People whose diseases are unrelated to Xq27, SOX3, or genetic causes (for example purely acquired eye or brain injuries) are unlikely to benefit directly from this project.

Why it matters

Potential benefit: If successful, this work could explain the genetic cause of several rare eye and brain disorders and lead to better genetic testing and targets for future treatments.

How similar studies have performed: The underlying discovery of Xq27 insertions affecting SOX3 builds on prior human genetic findings, but combining patient iPSCs with 3D genome mapping and single‑cell profiling for these disorders is a relatively new and specialized approach.

Where this research is happening

DAVIS, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.