An online decision tool to help cancer patients understand tumor genetic testing
Full Research Project 1: Testing the Efficacy of an eHealth Decision Support Tool to Help Cancer Patients Make Informed Decisions About Tumor Genetic Testing
This project offers a new online decision tool to help cancer patients decide about tumor genomic testing and whether to learn about possible hereditary risks.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Hunter College NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-11192799 on NIH RePORTER |
What this research studies
You would be given access to a revised eHealth decision support tool called Gene PilotLX that explains tumor genomic profiling and the chance it could reveal hereditary cancer risks. The study compares the online tool to traditional information to see which helps people feel more informed and comfortable discussing results with their providers. The tool was revised using feedback from community advisors and scientific experts to make it culturally appropriate for the local catchment area. The team will collect patient responses about knowledge, preferences, and communication with clinicians as part of the comparison.
Who could benefit from this research
Good fit: Adults with cancer who are in the institution's catchment area and are considering or undergoing tumor genomic profiling would be the ideal participants.
Not a fit: Patients who are not having tumor genomic testing or who cannot access or use an online tool (for example due to internet, device, or language barriers) may not benefit directly from this intervention.
Why it matters
Potential benefit: If successful, the tool could help patients better understand tumor genomic results, clarify preferences about learning hereditary findings, and improve communication with clinicians.
How similar studies have performed: Prior randomized work with the original Gene Pilot and other decision aids has shown improvements in patient knowledge and decision quality, and this project builds on that experience.
Where this research is happening
New York, United States
- Hunter College — New York, United States (Active)
Researchers
- Principal investigator: Revenson, Tracey a — Hunter College
- Study coordinator: Revenson, Tracey a
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.