An international gathering focused on improving care and research for Lowe Syndrome.
Official title: International Lowe Syndrome Symposium
Funded at Purdue University · NIH-11000678 · Data updated 2026-11-12
The International Lowe Syndrome Symposium in November 2024 at Purdue University is a friendly gathering for scientists, doctors, patients, and families to share ideas and work together on improving care and research for Lowe Syndrome, while also encouraging new researchers and promoting diversity in the field.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Purdue University NIH-funded |
| Lab location | 1 site (West Lafayette, United States) |
| Project start | September 1, 2024 |
| Project end | August 31, 2025 |
| Funding year | 2024 |
| Award (this year) | $20,000 |
| NIH project number | 1R13DK141245-01 |
| Project ID | NIH-11000678 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for participation include individuals affected by Lowe Syndrome, their families, and healthcare professionals involved in their care.
✕Less likely to help
Patients with conditions unrelated to Lowe Syndrome may not receive direct benefits from this symposium.
What this research studies
The International Lowe Syndrome Symposium, taking place in November 2024 at Purdue University, aims to bring together scientists, clinicians, patients, and families to address the challenges of Lowe Syndrome, a rare genetic disorder. This event will foster collaboration and knowledge sharing to enhance research and clinical practices related to the condition. The symposium will also focus on promoting diversity and inclusivity in medical research, empowering junior investigators, and providing a platform for innovative research through competitions and networking opportunities. By engaging a wide range of participants, the symposium seeks to create a comprehensive approach to understanding and treating Lowe Syndrome.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and treatment options for patients with Lowe Syndrome.
How similar studies have gone: Previous symposiums and collaborative efforts in rare disease research have shown success in advancing knowledge and treatment options.
Where this research is happening
-
Purdue University
West Lafayette, United States Active
Researchers
- Principal investigator: Aguilar, Ruben Claudio — Purdue University
- Study coordinator: Aguilar, Ruben Claudio
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.