African Sickle Cell Data Hub
Sickle Africa Data Coordinating Center
['FUNDING_OTHER'] · UNIVERSITY OF CAPE TOWN · NIH-11084302
This project runs a data hub to help researchers and clinics improve care for people with sickle cell disease in sub‑Saharan Africa.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF CAPE TOWN (nih funded) |
| Locations | 1 site (RONDEBOSCH, SOUTH AFRICA) |
| Trial ID | NIH-11084302 on ClinicalTrials.gov |
What this research studies
This project continues a data coordinating center that supports a network of clinics and researchers in Ghana, Nigeria, and Tanzania who care for people with sickle cell disease. It collects and links patient records, newborn screening results, and research measurements so doctors can spot problems earlier and test better treatments. The center also standardizes how information is recorded, trains local staff, and provides tools to run future clinical and epidemiological studies. By coordinating data and activities across sites, the project helps hospitals in the region work together and share findings.
Who could benefit from this research
Good fit: People of any age with sickle cell disease, including newborns identified through screening, who receive care at participating hospitals or clinics in sub‑Saharan Africa are the intended participants.
Not a fit: People without sickle cell disease, those living outside participating countries, or patients treated at non‑participating clinics are unlikely to directly benefit from this project.
Why it matters
Potential benefit: If successful, the project could speed research and help reduce early deaths and complications from sickle cell disease across sub‑Saharan Africa.
How similar studies have performed: Newborn screening and coordinated care programs in high‑income countries have greatly reduced childhood deaths from sickle cell disease, and prior SPARCo/SADaCC work has begun building similar capacity in Africa.
Where this research is happening
RONDEBOSCH, SOUTH AFRICA
- UNIVERSITY OF CAPE TOWN — RONDEBOSCH, SOUTH AFRICA (ACTIVE)
Researchers
- Principal investigator: WONKAM, AMBROISE — UNIVERSITY OF CAPE TOWN
- Study coordinator: WONKAM, AMBROISE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.