ADRD measurement and methods core for healthier dementia care and understanding
Official title: Core C - Measurement and Methods in ADRD and Demographic Differences Research
Funded at National Bureau of Economic Research · NIH-11420397 · Data updated 2026-11-12
A core research program aims to improve how we measure dementia symptoms, stages, and caregiver connections in large health databases to help people with Alzheimer's and related conditions.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Bureau of Economic Research NIH-funded |
| Lab location | 1 site (Cambridge, United States) |
| Project start | February 1, 1997 |
| Project end | August 31, 2029 |
| Funding year | 2026 |
| Award (this year) | $420,804 |
| NIH project number | 5P01AG005842-37 |
| Project ID | NIH-11420397 on NIH RePORTER |
Who could benefit from this research
✓Could help
This core analyzes data related to people with ADRD; it is not a clinical trial but informs understanding of dementia in real-world populations.
✕Less likely to help
Direct clinical treatment changes are not the immediate focus of this core.
What this research studies
This project develops and applies better ways to measure how dementia shows up in national databases and billing data, so researchers can better understand disease progression. It also works on capturing patient and provider demographics and linking cohabitating caregivers in these data. The work builds on current methods and advances them over time, with collaboration across cores and with the community through meetings and panels. The results should help tailor care and inform policy by providing more accurate measurements from real-world data.
Why it matters
Potential benefit: If successful, patients and caregivers could benefit from clearer insights into disease stages and demographics, improving care planning and access to resources.
How similar studies have gone: Previous work has shown that improved measurement in CMS and related databases enhances research quality and informs policy, though specific advances of this Core will be new.
Where this research is happening
-
National Bureau of Economic Research
Cambridge, United States Active
Researchers
- Principal investigator: Simon, Kosali Ilayperuma — National Bureau of Economic Research
- Study coordinator: Simon, Kosali Ilayperuma
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.