AD Knowledge Portal Data Coordination Center supports sharing and discovery of Alzheimer’s research
Official title: The AD Knowledge Portal Data Coordination Center
Funded at Sage Bionetworks · NIH-11330638 · Data updated 2026-11-12
A national effort to improve how Alzheimer’s and related dementia data are stored, shared, and used so researchers can find insights faster and develop new treatments.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Sage Bionetworks NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project start | September 30, 2018 |
| Project end | April 30, 2029 |
| Funding year | 2026 |
| Award (this year) | $4,309,301 |
| NIH project number | 5U24AG061340-08 |
| Project ID | NIH-11330638 on NIH RePORTER |
Who could benefit from this research
✓Could help
Patients with Alzheimer’s disease or related dementias, and participants contributing data or samples to multi-project collaborations, may indirectly benefit from faster translational research.
✕Less likely to help
Direct patient care is not part of this grant; benefits are through accelerated research and data sharing.
What this research studies
This grant funds a centralized data coordination center led by Sage Bionetworks to organize, harmonize, and disseminate AD/ADRD research data through the AD Knowledge Portal and Agora Platform. It emphasizes open science practices to accelerate translational work by making datasets more accessible and comparable across studies. The project enables cross-project analyses and collaboration among researchers, with an emphasis on standardizing data and workflows to speed discovery. Researchers, clinicians, and participants could benefit from faster translation of findings into therapies and better understanding of disease progression.
Why it matters
Potential benefit: Could speed up discovery of effective treatments and improve understanding of Alzheimer’s and related dementias by making data more usable for scientists and clinicians.
How similar studies have gone: Previous AMP-AD and related consortia have produced harmonized datasets and cross-consortium publications, demonstrating value of data-sharing efforts.
Where this research is happening
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Sage Bionetworks
Seattle, United States Active
Researchers
- Principal investigator: Heath, Laura Michelle — Sage Bionetworks
- Study coordinator: Heath, Laura Michelle
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.