Access for All in ALS — West Coordinating Center
Official title: Access for All in ALS (ALL ALS) West Clinical Coordinating Center
Funded at St. Joseph's Hospital and Medical Center · NIH-11381360 · Data updated 2026-11-12
This project builds a national network to collect clinical data and patient samples to speed development of new treatments for people living with ALS.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | St. Joseph's Hospital and Medical Center NIH-funded |
| Lab location | 1 site (Phoenix, United States) |
| Project start | September 25, 2023 |
| Project end | June 30, 2027 |
| Funding year | 2025 |
| Award (this year) | $20,235,572 |
| NIH project number | 3OT2NS136939-01S2 |
| Project ID | NIH-11381360 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates are adults living with ALS in the United States or Puerto Rico who can attend one of the consortium's clinical sites and agree to provide clinical information and biosamples over time.
✕Less likely to help
People without ALS, those unwilling or unable to travel to a participating site, or those who cannot provide consent or samples are unlikely to benefit directly from this project.
What this research studies
You would join a national network run by the ALL ALS West Coordinating Center that, together with an East center, supports 34 clinical sites across the United States and Puerto Rico. The project collects long-term clinical information and patient-derived samples such as blood and tissue, and links them to detailed clinical outcomes. A public-private partnership will standardize how samples and data are collected and shared with researchers to speed drug development. The West Coordinating Center at Barrow Neurological Institute manages site operations and quality control to make sure the samples and data are useful to scientists.
Why it matters
Potential benefit: If successful, this could help researchers find and test effective ALS therapies faster by giving them large, high-quality datasets and patient samples.
How similar studies have gone: Other large ALS biobanks and consortia have helped researchers discover disease markers and targets, though turning those findings into effective treatments has remained challenging.
Where this research is happening
-
St. Joseph's Hospital and Medical Center
Phoenix, United States Active
Researchers
- Principal investigator: Bowser, Robert P — St. Joseph's Hospital and Medical Center
- Study coordinator: Bowser, Robert P
Related research
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Access for All in ALS: West Coordinating Center for ALS patient care and research
A national ALS research network is building a West Coast coordinating center to collect and study high-quality patient samples and data to speed better ALS therapies.
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.