A tool to help parents make decisions about hypospadias care for their children
Official title: A type I hybrid effectiveness-implementation study of a parent-centered tool to promote shared decision-making in hypospadias care
Funded at Univ of North Carolina Chapel Hill · NIH-10938970 · Data updated 2026-11-12
This study is looking to help parents of boys with hypospadias make better decisions by using a helpful tool called the Hypospadias Hub, which aims to make conversations with doctors clearer and more supportive.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Univ of North Carolina Chapel Hill NIH-funded |
| Lab location | 1 site (Chapel Hill, United States) |
| Project start | August 22, 2024 |
| Project end | June 30, 2029 |
| Funding year | 2024 |
| Award (this year) | $685,747 |
| NIH project number | 1R01DK140178-01 |
| Project ID | NIH-10938970 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are parents of boys diagnosed with hypospadias, particularly those facing treatment decisions.
✕Less likely to help
Patients who do not have hypospadias or whose parents are not involved in treatment decisions may not benefit from this research.
What this research studies
This research focuses on improving the decision-making process for parents of boys with hypospadias, a common birth defect. It aims to reduce parental confusion and regret by implementing a shared decision-making tool called the Hypospadias Hub. Through a randomized controlled trial, the study will evaluate how effectively this tool enhances the quality of discussions between parents and healthcare providers. The research will also explore the challenges and supports for implementing this tool in clinical settings.
Why it matters
Potential benefit: If successful, this research could empower parents with better information and support, leading to more informed decisions regarding their child's hypospadias treatment.
How similar studies have gone: Previous research has shown that shared decision-making tools can improve patient outcomes and satisfaction in various medical contexts, suggesting a promising approach in this area.
Where this research is happening
-
Univ of North Carolina Chapel Hill
Chapel Hill, United States Active
Researchers
- Principal investigator: Schilling, Samantha S — Univ of North Carolina Chapel Hill
- Study coordinator: Schilling, Samantha S
Related research
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.