A resource for clinical immunologists to improve patient care.
USIDNET: A resource for clinical immunologists
This study is working to improve a resource for doctors who treat immune system disorders by creating a detailed registry of patients, which will help us understand how genetics affect health and lead to better tests and treatments for people with these conditions.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Hosp of Philadelphia NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project ID | NIH-10888227 on NIH RePORTER |
What this research studies
This research focuses on enhancing the United States Immunodeficiency Network (USIDNET), which serves as a comprehensive resource for clinical immunologists. It aims to create a diverse patient registry that includes detailed quality of life, laboratory, and clinical data, as well as genetic information. By standardizing data collection and improving genetic diagnostics for Inborn Errors of Immunity, the project seeks to better understand the relationship between genetic factors and patient outcomes. Patients may benefit from improved diagnostic tools and treatment options based on this enhanced data.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with Inborn Errors of Immunity or related autoimmune conditions.
Not a fit: Patients with unrelated health conditions or those not diagnosed with immunodeficiency disorders may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more accurate diagnoses and tailored treatments for patients with immunodeficiency disorders.
How similar studies have performed: Previous research utilizing similar data aggregation and standardization approaches has shown promise in improving patient outcomes in related fields.
Where this research is happening
Philadelphia, United States
- Children's Hosp of Philadelphia — Philadelphia, United States (Active)
Researchers
- Principal investigator: Sullivan, Kathleen E — Children's Hosp of Philadelphia
- Study coordinator: Sullivan, Kathleen E
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.