A registry for patients with spina bifida at the University of Pittsburgh
The National Spina Bifida Patient Registry at the University of Pittsburgh
This study is all about building a helpful database for people with spina bifida, so doctors and researchers can gather important health information to improve care and support for everyone living with this condition.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Pittsburgh at Pittsburgh NIH-funded |
| Lab location | 1 site (Pittsburgh, United States) |
| Project ID | NIH-11141527 on NIH RePORTER |
What this research studies
This research focuses on creating a comprehensive registry for individuals with spina bifida, which will collect and analyze health information to improve patient care and outcomes. By gathering data from patients, healthcare providers can better understand the condition and develop targeted interventions. The registry aims to facilitate collaboration among researchers and clinicians to enhance treatment strategies and support services for those affected by spina bifida.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with spina bifida of all ages.
Not a fit: Patients without a diagnosis of spina bifida or those who are not willing to participate in data collection may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare strategies and support for patients with spina bifida.
How similar studies have performed: Similar registries have shown success in improving patient outcomes and advancing research in other chronic conditions.
Where this research is happening
Pittsburgh, United States
- University of Pittsburgh at Pittsburgh — Pittsburgh, United States (Active)
Researchers
- Principal investigator: Dicianno, Brad E. — University of Pittsburgh at Pittsburgh
- Study coordinator: Dicianno, Brad E.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.