A project to collect and study samples from patients with myelin disorders.
Myelin Disorders Biorepository Project (MDBP) at the Biospecimen Exchange for Neurological Disorders (BioSEND)
['FUNDING_OTHER'] · CHILDREN'S HOSP OF PHILADELPHIA · NIH-10850332
This study is all about helping people with myelin disorders by collecting samples from patients like you, so researchers can learn more about these conditions and find better treatments.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | CHILDREN'S HOSP OF PHILADELPHIA (nih funded) |
| Locations | 1 site (PHILADELPHIA, UNITED STATES) |
| Trial ID | NIH-10850332 on ClinicalTrials.gov |
What this research studies
This research focuses on creating a biorepository for patients with myelin disorders, which are conditions affecting the protective covering of nerves. By collecting and analyzing biological samples, the project aims to better understand these disorders and their progression. Patients will be involved in providing samples and data that will help researchers develop new treatments and improve care. The project collaborates with multiple medical centers to ensure a comprehensive approach to data collection and analysis.
Who could benefit from this research
Good fit: Ideal candidates for participation include children and young adults diagnosed with myelin disorders.
Not a fit: Patients with myelin disorders who are not within the age range of 0-21 years may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and treatment options for patients with myelin disorders.
How similar studies have performed: Other research initiatives focusing on biobanking and data collection for neurological disorders have shown promising results in advancing treatment options.
Where this research is happening
PHILADELPHIA, UNITED STATES
- CHILDREN'S HOSP OF PHILADELPHIA — PHILADELPHIA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: VANDERVER, ADELINE LUCIE — CHILDREN'S HOSP OF PHILADELPHIA
- Study coordinator: VANDERVER, ADELINE LUCIE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.