A portable system to link cancer registry records with local community data
A Multilevel Data Analytic Solution to Advance Population Cancer Research
This project will create an easy-to-use data system that helps researchers and community health teams explore where and why cancer affects people differently.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Case Western Reserve University NIH-funded |
| Lab location | 1 site (Cleveland, United States) |
| Project ID | NIH-11177699 on NIH RePORTER |
What this research studies
The team will build Pop-CASE, a portable informatics platform that joins patient-level cancer registry records with detailed community and health-system data into a standardized database. They will implement the system in PostgreSQL using NAACCR-formatted registry fields plus U.S. Census American Community Survey data, Health Professional Shortage Area indicators, and small-area BRFSS estimates. A user-friendly web interface will let researchers and outreach professionals run quick queries and export results. The project also provides an implementation kit with a software container and guide so local sites can create their own Pop-CASE instance.
Who could benefit from this research
Good fit: Ideal candidates are people with cancer whose records appear in regional cancer registries and the community health teams or organizations that want to use those data to address local disparities.
Not a fit: Patients in areas without compatible registry or community data, or those seeking direct clinical treatment rather than population-level data work, are unlikely to see direct personal benefit.
Why it matters
Potential benefit: If successful, this could help uncover local cancer disparities faster and guide targeted prevention, screening, and outreach efforts.
How similar studies have performed: There have been pilot data-integration efforts and prototypes, but this is presented as the first transportable, standardized platform designed for broad, location-specific deployment.
Where this research is happening
Cleveland, United States
- Case Western Reserve University — Cleveland, United States (Active)
Researchers
- Principal investigator: Rose, Johnie — Case Western Reserve University
- Study coordinator: Rose, Johnie
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.