A platform for sharing data on Alzheimer's disease and related dementias
Official title: The AD Knowledge Portal Data Coordination Center
Funded at Sage Bionetworks · NIH-11166349 · Data updated 2026-11-12
This study is working on a new way to share and organize information about Alzheimer's and related dementias to help researchers work together better, with the goal of finding new treatments that can benefit patients like you.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Sage Bionetworks NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project start | September 30, 2018 |
| Project end | April 30, 2029 |
| Funding year | 2025 |
| Award (this year) | $3,432,331 |
| NIH project number | 5U24AG061340-07 |
| Project ID | NIH-11166349 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for participation or benefit from this research include individuals diagnosed with Alzheimer's disease or related dementias.
✕Less likely to help
Patients with other unrelated neurological disorders may not receive any benefit from this research.
What this research studies
This research focuses on creating a centralized data coordination center to enhance the understanding of Alzheimer's disease and related dementias. By utilizing open science practices, the project aims to gather and disseminate valuable research data through platforms like the AD Knowledge Portal and Agora. These resources will facilitate collaboration among researchers and promote integrative analyses, ultimately leading to new therapeutic approaches. Patients can benefit from the insights gained through this collaborative effort, which seeks to accelerate the development of effective treatments.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and treatment options for Alzheimer's disease and related dementias.
How similar studies have gone: Previous research initiatives utilizing similar collaborative and data-sharing approaches have shown promise in advancing understanding and treatment of complex diseases.
Where this research is happening
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Sage Bionetworks
Seattle, United States Active
Researchers
- Principal investigator: Heath, Laura Michelle — Sage Bionetworks
- Study coordinator: Heath, Laura Michelle
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.