A platform for sharing and analyzing ethical, legal, and social implications of genetics research.
ELSIhub: National Center for ELSI Resources and Analysis
This study is working on a new online platform called ELSIhub to help people share and understand important information about the ethical, legal, and social issues related to genetics, making it easier for patients and communities to stay informed and connected.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Stanford University NIH-funded |
| Lab location | 1 site (Stanford, United States) |
| Project ID | NIH-10974975 on NIH RePORTER |
What this research studies
This research focuses on creating a centralized platform called ELSIhub, which will facilitate the sharing, curation, and synthesis of research related to the ethical, legal, and social implications (ELSI) of genetics. By engaging with various communities interested in ELSI, the project aims to enhance collaboration and improve the accessibility of ELSI research findings. The approach includes developing innovative processes for content creation and fostering partnerships among researchers and organizations. Patients and communities will benefit from increased awareness and understanding of ELSI issues in genetics.
Who could benefit from this research
Good fit: Ideal candidates for participation or benefit include individuals and communities interested in the ethical, legal, and social aspects of genetic research.
Not a fit: Patients who are not engaged or interested in genetic research or its implications may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could provide patients with better access to information about the ethical and social implications of genetic research, leading to more informed decision-making.
How similar studies have performed: Other research initiatives focused on ELSI issues have shown promise in enhancing understanding and collaboration, indicating that this approach is building on established successes.
Where this research is happening
Stanford, United States
- Stanford University — Stanford, United States (Active)
Researchers
- Principal investigator: Cho, Mildred K. — Stanford University
- Study coordinator: Cho, Mildred K.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.