A peer-led program to support caregivers of people with Lewy-body dementia.
Official title: Competence, Autonomy, Relatedness, and Connections (CARe Connections): A Peer-Led Intervention Designed with Parkinsons Disease & Related Disorders Carepartners to Improve Holistic Support
Funded at University of Rochester · NIH-10985248 · Data updated 2026-11-12
This study is all about finding better ways to support the loved ones who care for people with Lewy-body dementia, by involving them in creating solutions that meet their needs and help make caregiving a more positive experience.
Quick facts
| Grant type | Career grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Rochester NIH-funded |
| Lab location | 1 site (Rochester, United States) |
| Project start | September 1, 2024 |
| Project end | June 30, 2029 |
| Funding year | 2024 |
| Award (this year) | $108,593 |
| NIH project number | 1K01AG084878-01A1 |
| Project ID | NIH-10985248 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are carepartners of individuals diagnosed with Lewy-body dementia or related Parkinsonian disorders.
✕Less likely to help
Patients who are not involved in caregiving or do not have a carepartner may not receive direct benefits from this research.
What this research studies
This research focuses on improving support for carepartners of individuals with Lewy-body dementia, a common neurodegenerative disorder. It aims to engage carepartners in developing and testing interventions that address their unique needs and perspectives, rather than solely focusing on caregiver burden. By utilizing stakeholder engagement methods, the research seeks to create a balanced approach to caregiving that acknowledges both the challenges and fulfilling aspects of the role. The ultimate goal is to enhance the overall caregiving experience and improve the quality of care provided to patients.
Why it matters
Potential benefit: If successful, this research could lead to improved support systems for caregivers, enhancing their well-being and effectiveness in caring for individuals with Lewy-body dementia.
How similar studies have gone: Previous research has shown that peer-led interventions can be effective in supporting caregivers in various contexts, suggesting a promising approach for this population.
Where this research is happening
-
University of Rochester
Rochester, United States Active
Researchers
- Principal investigator: Seshadri, Sandhya — University of Rochester
- Study coordinator: Seshadri, Sandhya
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.