A peer-led program to support caregivers of people with Lewy-body dementia.
Competence, Autonomy, Relatedness, and Connections (CARe Connections): A Peer-Led Intervention Designed with Parkinsons Disease & Related Disorders Carepartners to Improve Holistic Support
This study is all about finding better ways to support the loved ones who care for people with Lewy-body dementia, by involving them in creating solutions that meet their needs and help make caregiving a more positive experience.
Quick facts
| Grant type | Career grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Rochester NIH-funded |
| Lab location | 1 site (Rochester, United States) |
| Project ID | NIH-10985248 on NIH RePORTER |
What this research studies
This research focuses on improving support for carepartners of individuals with Lewy-body dementia, a common neurodegenerative disorder. It aims to engage carepartners in developing and testing interventions that address their unique needs and perspectives, rather than solely focusing on caregiver burden. By utilizing stakeholder engagement methods, the research seeks to create a balanced approach to caregiving that acknowledges both the challenges and fulfilling aspects of the role. The ultimate goal is to enhance the overall caregiving experience and improve the quality of care provided to patients.
Who could benefit from this research
Good fit: Ideal candidates for this research are carepartners of individuals diagnosed with Lewy-body dementia or related Parkinsonian disorders.
Not a fit: Patients who are not involved in caregiving or do not have a carepartner may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved support systems for caregivers, enhancing their well-being and effectiveness in caring for individuals with Lewy-body dementia.
How similar studies have performed: Previous research has shown that peer-led interventions can be effective in supporting caregivers in various contexts, suggesting a promising approach for this population.
Where this research is happening
Rochester, United States
- University of Rochester — Rochester, United States (Active)
Researchers
- Principal investigator: Seshadri, Sandhya — University of Rochester
- Study coordinator: Seshadri, Sandhya
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.