A mobile app to help manage childhood nephrotic syndrome
A Novel Mobile Application for Childhood Nephrotic Syndrome Management
This study is testing a helpful mobile app called UrApp that aims to support families in managing childhood nephrotic syndrome, making it easier for caregivers to take care of their kids with this kidney condition.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project ID | NIH-10655360 on NIH RePORTER |
What this research studies
This research focuses on developing and testing a user-friendly mobile application designed to assist families in managing childhood nephrotic syndrome, a common chronic kidney disease in children. The app, named UrApp, aims to improve self-management and clinical outcomes by providing resources and support for caregivers of children with this condition. The research will involve a pilot randomized trial across three pediatric sites to evaluate the app's effectiveness in enhancing both behavioral and biological outcomes. Additionally, the study will assess factors that influence the app's effectiveness and engage caregivers to ensure the app meets their needs.
Who could benefit from this research
Good fit: Ideal candidates for this research are children aged 0-11 years who have been newly diagnosed with nephrotic syndrome and their caregivers.
Not a fit: Patients who are older than 11 years or those who do not have a diagnosis of nephrotic syndrome may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly improve the management of childhood nephrotic syndrome, leading to better health outcomes for affected children.
How similar studies have performed: Other research has shown success with mobile health applications in managing chronic diseases, indicating that this approach has potential for positive outcomes.
Where this research is happening
Atlanta, United States
- Emory University — Atlanta, United States (Active)
Researchers
- Principal investigator: Wang, Chia-Shi — Emory University
- Study coordinator: Wang, Chia-Shi
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.