A data warehouse for cystic fibrosis research
Official title: The Georgia Cystic Fibrosis Data Warehouse
Funded at Emory University · NIH-11045040 · Data updated 2026-11-12
This study is all about gathering and analyzing information from cystic fibrosis patients to better understand how the condition changes over time and how it affects overall health, with the goal of finding better treatments and improving care for everyone living with CF.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | March 1, 2024 |
| Project end | February 28, 2029 |
| Funding year | 2025 |
| Award (this year) | $699,550 |
| NIH project number | 5U24HL171672-02 |
| Project ID | NIH-11045040 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals diagnosed with cystic fibrosis, particularly those who are experiencing complications or comorbidities related to the disease.
✕Less likely to help
Patients without a diagnosis of cystic fibrosis or those who are not actively engaged in treatment may not benefit from this research.
What this research studies
This research focuses on creating a comprehensive data warehouse for cystic fibrosis (CF) that will collect and analyze patient-derived samples and clinical outcomes. By linking these data points, the project aims to better understand the progression of CF and its associated comorbidities, particularly as patients age and experience increased treatment burdens. The study will utilize samples from the established CF Biospecimen Repository at Emory University, which has been instrumental in providing valuable biological materials for research. This initiative will help researchers develop more effective treatments and improve patient care.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and management of cystic fibrosis, enhancing the quality of life for patients.
How similar studies have gone: Other research initiatives utilizing biobanks and longitudinal data collection have shown success in advancing our understanding of chronic diseases, indicating that this approach is promising.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Stecenko, Arlene a — Emory University
- Study coordinator: Stecenko, Arlene a
Related research
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-
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-
Gut microbiome in cystic fibrosis and colorectal cancer risk
Researchers are studying how the gut bacteria in adults with cystic fibrosis influence the development of colorectal cancer.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.