A data warehouse for cystic fibrosis research
The Georgia Cystic Fibrosis Data Warehouse
['FUNDING_OTHER'] · EMORY UNIVERSITY · NIH-11045040
This study is all about gathering and analyzing information from cystic fibrosis patients to better understand how the condition changes over time and how it affects overall health, with the goal of finding better treatments and improving care for everyone living with CF.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | EMORY UNIVERSITY (nih funded) |
| Locations | 1 site (ATLANTA, UNITED STATES) |
| Trial ID | NIH-11045040 on ClinicalTrials.gov |
What this research studies
This research focuses on creating a comprehensive data warehouse for cystic fibrosis (CF) that will collect and analyze patient-derived samples and clinical outcomes. By linking these data points, the project aims to better understand the progression of CF and its associated comorbidities, particularly as patients age and experience increased treatment burdens. The study will utilize samples from the established CF Biospecimen Repository at Emory University, which has been instrumental in providing valuable biological materials for research. This initiative will help researchers develop more effective treatments and improve patient care.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with cystic fibrosis, particularly those who are experiencing complications or comorbidities related to the disease.
Not a fit: Patients without a diagnosis of cystic fibrosis or those who are not actively engaged in treatment may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and management of cystic fibrosis, enhancing the quality of life for patients.
How similar studies have performed: Other research initiatives utilizing biobanks and longitudinal data collection have shown success in advancing our understanding of chronic diseases, indicating that this approach is promising.
Where this research is happening
ATLANTA, UNITED STATES
- EMORY UNIVERSITY — ATLANTA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: STECENKO, ARLENE A — EMORY UNIVERSITY
- Study coordinator: STECENKO, ARLENE A
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.