A congress focused on the ethical, legal, and social implications of genetic research.
ELSI Biennial Congress
This study is setting up regular meetings for people who study the ethical, legal, and social issues related to genetic research, so they can share ideas and work together to make sure everyone’s voice is heard in this important conversation.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Columbia University Health Sciences NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-10655458 on NIH RePORTER |
What this research studies
This research aims to organize a series of biennial congresses dedicated to discussing the ethical, legal, and social implications (ELSI) of genetic and genomic research. The congresses will provide a platform for ELSI researchers from various disciplines, including humanities, social sciences, and medicine, to present their findings and engage in meaningful dialogue. By fostering collaboration and sharing knowledge, the congresses will address the growing need for a dedicated space for ELSI research discussions and will promote inclusivity and diversity in the field.
Who could benefit from this research
Good fit: Ideal candidates for participation or benefit from this research include individuals and families affected by genetic conditions, as well as researchers and professionals in the field of bioethics.
Not a fit: Patients who are not engaged in genetic research or do not have a vested interest in the ethical implications of such research may not receive direct benefits from this congress.
Why it matters
Potential benefit: If successful, this research could enhance understanding and dialogue around the ethical implications of genetic research, ultimately benefiting patients and communities involved in genomic studies.
How similar studies have performed: Previous congresses and conferences focused on bioethics and genetic research have shown success in fostering collaboration and advancing the field, indicating that this approach is both valuable and necessary.
Where this research is happening
New York, United States
- Columbia University Health Sciences — New York, United States (Active)
Researchers
- Principal investigator: Lee, Sandra Soo-Jin — Columbia University Health Sciences
- Study coordinator: Lee, Sandra Soo-Jin
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.