A centralized resource for sharing data on Alzheimer's disease.
DISCOVERY - Repository Core
['FUNDING_OTHER'] · MASSACHUSETTS GENERAL HOSPITAL · NIH-10929429
This study is working on building a helpful database that gathers and shares important health information about Alzheimer's disease to make it easier for researchers to work together, which could lead to better treatments for patients like you.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | MASSACHUSETTS GENERAL HOSPITAL (nih funded) |
| Locations | 1 site (BOSTON, UNITED STATES) |
| Trial ID | NIH-10929429 on ClinicalTrials.gov |
What this research studies
This research focuses on creating a comprehensive repository that collects and shares de-identified clinical, imaging, and biospecimen data related to Alzheimer's disease. By leveraging existing NIH-funded resources and expertise in data management, the project aims to facilitate collaboration among various research sites and the broader scientific community. Patients can benefit from improved research outcomes as the repository will enhance the quality and accessibility of data used in Alzheimer's studies.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with Alzheimer's disease or related dementias who are interested in contributing to the advancement of research.
Not a fit: Patients with non-Alzheimer's related cognitive impairments or those not diagnosed with dementia may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to more effective treatments and interventions for Alzheimer's disease through better data sharing and collaboration.
How similar studies have performed: Other research initiatives utilizing centralized data repositories have shown success in enhancing collaboration and accelerating discoveries in Alzheimer's research.
Where this research is happening
BOSTON, UNITED STATES
- MASSACHUSETTS GENERAL HOSPITAL — BOSTON, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: HELMER, KARL GERARD — MASSACHUSETTS GENERAL HOSPITAL
- Study coordinator: HELMER, KARL GERARD
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Alzheimer disease dementia, Alzheimer syndrome, Alzheimer's Disease