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Patient Resources

We've compiled helpful resources to support you through your clinical trial journey, from initial research to potential participation.

Preparing for Clinical Trials

Questions to Ask Your Doctor

• Is a clinical trial appropriate for my condition?
• What are the potential benefits and risks?
• How might this affect my current treatment?
• What should I expect during the trial?
• Are there any trials you would recommend?

Questions to Ask the Research Team

• What is the purpose of this trial?
• What are the possible side effects?
• How long will the trial last?
• What costs will I be responsible for?
• Will my insurance cover trial-related expenses?

Understanding Informed Consent

Informed consent is a process, not just a document. It should include:

• Clear explanation of the study's purpose
• Description of procedures and timeline
• Discussion of risks and benefits
• Information about alternative treatments
• Your right to withdraw at any time

Financial Considerations

What's Typically Covered

• Study-related tests and procedures
• Investigational medications
• Additional monitoring required by the study

What You May Pay For

• Standard care treatments
• Travel expenses
• Lodging if required

Support Organizations

General Clinical Trial Information

• ClinicalTrials.gov: Official database of clinical trials
• NIH Clinical Center: Information about NIH trials
• FDA: Regulatory information about clinical trials

Disease-Specific Organizations

Many condition-specific organizations provide clinical trial information:

• American Cancer Society
• American Heart Association
• National Multiple Sclerosis Society
• Alzheimer's Association

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