Condition
VHL - Von Hippel-Lindau Syndrome clinical trials and research
As of November 12, 2026, Find a Trial lists 2 VHL - Von Hippel-Lindau Syndrome clinical trials that are recruiting, at sites in 2 countries (most in Italy (1), Hong Kong (1)). By phase: Phase 2 (1). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 2Clinical trials
- 2Countries
All recruiting trials (2)
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Belzutifan for VHL-associated tumors: patient registry
This registry collects real-world data on adults with VHL who choose belzutifan to see how well it works and how safe it is over time.
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CAIX-targeted PET imaging to find tumors in people with von Hippel‑Lindau (VHL) disease
This trial gives a single dose of a CAIX-targeting radiolabeled antibody and does a PET/CT to see if the scan can find VHL‑related tumors in adults with VHL or in people with VHL-associated tumors needing surgery.
Quick answers
How many VHL - Von Hippel-Lindau Syndrome clinical trials are recruiting right now?
2, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 2 countries. The most sites are in Italy (1 trial), Hong Kong (1 trial). Each study page lists its sites and which ones are recruiting.
What phases are they in?
Phase 2: 1. Trials with no phase listed are usually device, behavioural or observational studies.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.