Condition
Erdheim-Chester Disease (ECD) clinical trials and research
As of November 12, 2026, Find a Trial lists 2 Erdheim-Chester Disease (ECD) clinical trials that are recruiting, at sites in 11 countries (most in Italy (2), United States (2), France (1)). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 2Clinical trials
- 11Countries
All recruiting trials (2)
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ECD-Score: tracking disease features and outcomes in Erdheim-Chester disease
This observational project will collect clinical, molecular, and treatment data from people with Erdheim‑Chester disease to try to create an 'ECD‑Score' that tracks disease activity and outcomes.
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Registry for rare histiocytic disorders
This study is gathering information from people of all ages with rare histiocytic disorders to help improve diagnosis and treatment options.
Quick answers
How many Erdheim-Chester Disease (ECD) clinical trials are recruiting right now?
2, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 11 countries. The most sites are in Italy (2 trials), United States (2 trials), France (1 trial), United Kingdom (1 trial), Argentina (1 trial). Each study page lists its sites and which ones are recruiting.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.